Think of it like a 1,000,000 piece jigsaw puzzle

It has been easy to get discouraged along the way because there has been so little that the doctors have been able to tell me.  The medications have done very little to help and I feel very sick.  But the kindness of friends and family who have gone over and above to support us and show love has been...there are no words to explain how grateful we are for each of you.  For weeks I have not been allowed to drive or work.  Even just a text or a quick link to a new recipe to try has been so encouraging that people have not forgotten about us.  I am a private person usually and this has been especially hard to share about.  I am only opening up now with the hope that more people can have compassion for what a new struggle we are finding ourselves in...
As we learn to accept it I hope our friends can be understanding with us as we are learning and processing it all too.

Here is what I know so far.

I have had 3 trips to the ER.  They have tried every migraine cocktail of drugs in the book and nothing has even touched the pain and nothing has broken the migraine.
2 MRI's--One cyst (more on that later)
1 PET Scan--No cancer--Thank the sweet baby Jesus
1 CT Angiogram--Results normal
1 Echo cardiogram--results still pending more on that later

I have seen specialists in Colorado and Houston, TX:
5 Neurologists
3 Neurosurgeons
1 Neuro-opthamologist
1 Opthmologist
1 OBGYN
1 Endocrinologist
1 Chiropractor
1 Accupuncturist
1 Internal Medicine doctor

For now the diagnosis is: Chronic Migraines, Celiacs Disease, Pineal Gland Cyst...

Still waiting for more appointments next week and more results to be processed.  Waiting to be seen by a headache specialist at University Hospital--Anyone have any amazing connections there?      

http://www.migraineresearchfoundation.org/fact-sheet.html

https://celiac.org/celiac-disease/what-is-celiac-disease/

http://rarediseases.org/rare-diseases/pineal-cysts-symptomatic/